AscellaHealth 支持罕見疾病患者的努力




AscellaHealth 支持罕見疾病患者及其照顧者,慶祝罕見疾病日(2月28日)

2025年2月26日,賓夕法尼亞州伯溫——AscellaHealth作為全球合作夥伴,致力於為專科製藥行業提供可定制的解決方案,重申其對全球3億名罕見疾病患者的支持。在每年2月最後一天舉行的罕見疾病日之際,AscellaHealth團隊參與這一全球倡議,以提高對罕見疾病的認識,並強調這些社區中的力量和團結。AscellaHealth強調,公平獲取醫療服務的必要性,並指出目前已知的罕見疾病超過6000種,其中72%是遺傳性疾病,70%的遺傳性罕見疾病在兒童時期就開始出現。

AscellaHealth的首席執行官Dea Belazi表示:“AscellaHealth的使命與罕見疾病日的目標密切相關,將患者置於首位,並與罕見疾病社區團結一致。每天,我們的團隊都在推進定制的臨床計劃和服務,以支持罕見疾病的研究,加快診斷和治療,並改善治療效果和新療法的獲取。雖然罕見疾病可能單獨影響較小的患者群體,但它們仍然影響數百萬人,並對社會造成重大挑戰。”

Belazi指出,AscellaHealth提供的端到端解決方案能夠加速改變生命的療法的發現和商業化,從而改善全球罕見疾病患者的生活。

AscellaHealth與全球專科製藥廠商合作,推進創新研究,加速突破性的細胞和基因療法(CGTs)的推出,這些療法有潛力治愈或減緩罕見疾病的進程。公司的專家團隊還與保險支付方密切合作,探索報銷策略和福利管理方法,以增強高成本治療的獲取。AscellaHealth致力於提供全面的解決方案,幫助提高運營效率,擴大獲取渠道,並為成員帶來更好的結果。

為了紀念罕見疾病日,作為我們持續的Podcast Pulse系列的一部分,AscellaHealth製作了一期特別播客,展示了在罕見疾病旅程中受益於我們專業護理協調員支持的患者的鼓舞人心的故事。我們慶祝他們的堅韌和勇氣,自豪地放大他們的聲音,以表彰這個有意義的日子。

關於 AscellaHealth LLC

AscellaHealth是一家全球合作夥伴,為生命科學和醫療保健公司提供經過驗證的端到端解決方案,以提高複雜慢性病患者的生活質量。專業團隊確保關鍵醫療產品從製造商順利送達患者,同時確保資金在保險支付方和製藥公司之間的高效流動。

在當今社會,罕見疾病的問題不容忽視,AscellaHealth的努力顯示出企業在這方面的責任感和積極性。這不僅是對患者的支持,也是對整個醫療體系的挑戰。隨著科技的進步,細胞和基因療法的發展為許多罕見疾病患者帶來了希望,但仍需解決獲取這些高成本療法的障礙。AscellaHealth的合作模式和創新策略或許能成為其他企業的借鑒,促進更廣泛的醫療公平。未來,如何在保護患者權益的同時推動醫療創新,將是業界需要共同面對的課題。

以上文章由特價GPT API KEY所翻譯及撰寫。而圖片則由FLUX根據內容自動生成。

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{
"intro": "Create an ultra realistic 8K UHD DSLR photo based on the attached image as a reference of facial features, maintaining 100% likeness.",

"subject": {
"identity": "A stylish beautiful woman portrayed as Cleopatra, the eternal Queen of Egypt, radiating supreme authority, elegance, and divine power.",
"angle": "Full-body editorial portrait captured at a cinematic 3/4 angle, both Cleopatra and the horse positioned diagonally, rendered in ultra-crisp clarity with no blur.",
"pose": {
"body_position": "She is riding a majestic white horse, seated confidently with impeccable royal posture, her torso slightly turned to a 3/4 angle to emphasize grace and dominance.",
"hands": "One hand gently holds the gold-accented reins, while the other rests elegantly near her waist, displaying ornate jewelry.",
"expression": "She looks directly at the camera with a calm, commanding, and seductive gaze—the unmistakable presence of a queen born to rule."
}
},

"appearance": {
"outfit": "An opulent, ultra-bongga Cleopatra couture gown in pristine white and radiant gold. The gown features a sculpted corset bodice richly embroidered with gold hieroglyphic motifs, sun-disk patterns, and crystal beadwork. Flowing white silk, chiffon, and sheer organza panels cascade dramatically from the waist and shoulders, creating powerful movement as she rides. A daring thigh-high slit reveals her leg, balancing sensuality with imperial elegance. Every seam is traced with gold-thread embroidery for a luminous, goddess-like silhouette.",
"accessories": "She wears the exact Cleopatra headpiece from the attached reference image: a regal black-and-gold striped nemes-style headdress with a polished gold cobra (uraeus) centerpiece at the forehead, structured side panels, and intricate gold detailing. Paired with a wide Egyptian collar necklace with turquoise accents, engraved gold arm cuffs, crystal finger rings, an ornate gold waist belt, delicate anklets, and elegant flat Egyptian sandals.",
"hair": "Her hair is fully concealed beneath the nemes headpiece as shown in the reference image, ensuring perfect historical accuracy and symmetry.",
"makeup": "Ultra-bold, highly colorful Egyptian eye makeup with ceremonial ink artistry. Her eyes feature sharp elongated black kohl eyeliner extended dramatically past the outer corners, layered with vivid turquoise, teal, emerald green, sapphire blue, violet, and metallic gold pigments blended in high-fashion gradients. Beneath each eye, intricate hand-drawn ink designs inspired by ancient Egyptian symbolism are visible—fine black and gold lines, dots, and sacred motifs echoing hieroglyphs and protective markings, following the natural curve of the lower eye and cheekbone. Her complexion is flawless and softly bronzed with luminous highlights, brows are sculpted and powerful, cheeks carry a subtle coral-rose flush, and lips are finished in a refined nude-rose satin tone to balance the intense, artistic eye look."
},

"props": {
"animal": "A powerful, majestic white horse with a flowing ivory mane, sculpted muscles, and intelligent dark eyes. The horse wears elegant white-and-gold tack engraved with Egyptian motifs, symbolizing royal conquest, divine favor, and sovereignty."
},

"background": {
"macro_environment": "A vast open desert landscape near the Egyptian palace and pyramids at golden hour, stretching endlessly beneath a dramatic sky glowing with gold, amber, and soft ivory tones.",
"midground_details": "Distant pyramids rising from the sand, monumental stone statues, ceremonial banners moving in the wind, and faint silhouettes of royal guards and attendants placed far behind for scale.",
"micro_elements": "Fine desert sand lifted by the horse’s movement, sharply defined gold engravings on the reins, visible embroidery threads on the gown, subtle translucency of sheer fabrics, radiant light reflections on gold surfaces, and crisp, realistic shadows—everything rendered with extreme clarity and zero blur."
},

"lighting": {
"type": "Cinematic natural golden-hour lighting with soft reflective highlights.",
"effect": "Warm sunlight intensifies the white-and-gold palette, ignites the vibrant eye makeup colors and ink details, and illuminates the horse’s coat, creating a radiant, divine, editorial glow."
},

"camera": {
"camera_type": "DSLR",
"resolution": "8K UHD",
"lens": "50mm prime lens",
"aperture": "f/8 for maximum sharpness across subject and background",
"iso": 100,
"shutter_speed": "1/250s to freeze motion while maintaining realism",
"focus": "Extreme sharp focus from foreground to background, no bokeh, no blur"
},

"style": "High-fashion editorial, cinematic realism, divine Egyptian royalty, white-and-gold couture contrasted with vibrant ceremonial eye art, powerful, sensual, ultra-detailed, sharp, majestic"
} A hand holding a broken mirror piece with a man's face reflected in it against a cloudy sky background. The mirror piece is jagged and held up by fingers, showing the man's close-up face with stubble and piercing eyes 
100% use my upload reference image image generate Generate an ultra-realistic, highly ultra-detailed, 8k resolution with 1080x1080 pixel portrait of me using the uploaded image for reference (preserved the likeness and the original face for reference) of a cinematic studio portrait of a woman seated on a simple wooden chair with a minimalist design, positioned slightly to the left of the frame. She is captured in a contemplative pose, with her body turned to the left, her left arm resting gracefully on the back of the chair, and her right hand gently touching her face near her lips, conveying a sense of introspection and elegance. Her long, wavy hair cascades naturally over her shoulders, framing her face and adding softness to the composition. She wears an oversized, textured knit sweater that slips off her shoulders, exposing her collarbones and upper chest, emphasizing a relaxed and intimate mood. Her legs are bare, with her right foot flat on the ground and her left knee slightly raised, creating a dynamic line that guides the viewer’s eye through the composition. *** The background is a seamless, deep charcoal or dark brown studio backdrop, providing a rich, neutral setting that enhances the dramatic lighting. The lighting setup features a single, soft yet directional light source positioned to the left of the subject, casting gentle, sculptural shadows that highlight the contours of her face, shoulders, and arms, while creating a subtle gradient across her form. The light accentuates the texture of her sweater and the natural shine of her hair, adding depth and dimension to the image. The color palette is monochromatic with warm, muted tones—shades of gray, brown, and beige—contributing to a timeless, artistic aesthetic. The image is shot with a professional full-frame camera using an 85mm or 50mm lens at a wide aperture (f/1.8 to f/2.😎 to achieve a shallow depth of field, ensuring the subject is in sharp focus while the background remains softly blurred. The resolution is ultra-high, capturing every detail from the fine texture of her sweater to the subtle expression of her pose. The overall style is elegant, contemplative, and refined, emphasizing mood and atmosphere over overt glamour. Post-processing is minimal, maintaining natural skin tones, enhancing contrast and clarity, and preserving the authenticity of the scene. This portrait embodies a delicate balance between simplicity and emotional depth, making it suitable for fine art, editorial, or fashion photography.