讓我們一起打破偏見,支持偏頭痛患者!




Shades for Migraine推動意識與行動,打破偏見
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全球運動為偏頭痛患者帶來可見性、社群與希望
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2025年6月10日,羅德島普羅維登斯(GLOBE NEWSWIRE)—— 非營利組織「偏頭痛疾病協會」透過其全球Shades for Migraine意識運動,改變了對偏頭痛疾病的討論。這項運動結合了可見性與行動,促進對話,對抗偏見,並提升患者的聲音,旨在增進公眾對偏頭痛的理解。

偏頭痛不僅僅是劇烈的頭痛。它是一種複雜的神經系統疾病,可能影響視力、情緒、平衡、睡眠,甚至思維和語言方式。儘管有4000萬美國人受到影響,並且是50歲以下女性的主要殘疾原因,偏頭痛仍然受到高度的污名化,經常被輕視。

「對於偏頭痛患者來說,最大的障礙之一就是症狀往往不明顯,」神經科醫生及Shades for Migraine醫療大使Franchesca Fiorito博士表示。「這種隱形性導致懷疑、不理解和評價。」

讓偏頭痛可見。展現關心,佩戴一副眼鏡。

偏頭痛不僅是疼痛,它影響生活的方方面面。作為這項運動的一部分,全球各地的人們在公共服務公告《偏頭痛無濾鏡》中分享了他們的個人經歷,真實而坦誠地展現了偏頭痛的日常現實。他們形容生活在這種疾病下是孤獨、昂貴、疲憊和心碎的——但這些掙扎在很大程度上是看不見的。

Shades for Migraine旨在讓偏頭痛及其影響變得更加可見。太陽眼鏡——象徵著光敏感,這是一種常見症狀——同時也作為支持的強大象徵。

在這個6月,正值偏頭痛與頭痛意識月,該運動邀請公眾「展現關心,佩戴一副眼鏡」,在社交媒體上發佈戴著太陽眼鏡的照片,並使用標籤#ShadesForMigraine

Shades for Migraine代表著可見性。它是對患者的肯定。」慢性偏頭痛患者及倡導者Jessica Johnson-Jones表示。「這提醒我們,即使在最黑暗的時刻,仍然有社群和光明。這是對我不是孤單的溫柔提醒。」

全球倡導,個人影響。

Shades for Migraine在全球範圍內提高意識,同時促進聯繫,創造持久影響。對許多人來說,這項運動是個人且強大的。

「Shades for Migraine意味著社群和希望,」慢性偏頭痛患者及倡導者Jacopo Papi表示。「這提醒我,在我所經歷的痛苦中,我並不孤單——全世界都有理解這種痛苦的人,並在努力讓它被看見和重視。Shades for Migraine在我感到無形的時候給了我一個聲音。」

加入Shades for Migraine運動

「Shades for Migraine將像自拍這樣的小日常行動,轉變為全球聲明,」運動項目經理Sara Berkowitz說。「Shades團結了患者、護理者、醫療提供者、企業、朋友和倡導者,圍繞著共同的事業。」

如何參與:

拍攝戴著太陽眼鏡的照片

分享到社交媒體,使用標籤#ShadesForMigraine

展示你的支持並標記@ShadesForMigraine以提升你的帖子

關於Shades for MigraineShades for Migraine是一項全球意識運動,鼓勵人們在6月21日佩戴太陽眼鏡,以表達對偏頭痛患者的支持。該運動於2017年由非營利組織「偏頭痛疾病協會」啟動,旨在通過有趣、吸引人且包容的方式來提高意識,激發對話並建立同理心。

Shades for Migraine部分由Pfizer和AbbVie贊助

這項運動不僅是對偏頭痛的關注,更是對患者的支持與理解。透過這種簡單的行動,參與者不僅能夠表達他們的關心,還能夠促進對偏頭痛的認識,打破社會對這種疾病的偏見。這樣的行動不僅能夠提升患者的可見性,還能夠讓他們感受到來自社會的支持與共鳴,進而減輕他們在面對疾病時的孤獨感。希望更多人能夠參與這個運動,讓偏頭痛不再是隱形的痛苦,而是被理解和重視的現實。

以上文章由特價GPT API KEY所翻譯及撰寫。而圖片則由FLUX根據內容自動生成。

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